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Water… Friend or Enemy?

Water… Friend or Enemy?

Swimming is a happy place for lil man.  Water safety and survival is extremely important to us, especially since we live in the land of 10,000+ lakes. Lil man absolutely loves water! He wants to swim in it, splash in it, play with bubbles in the water… anything...
What Keeps You Awake At Night

What Keeps You Awake At Night

As I lay in bed, I wonder if lil man will wake up with a nightmare tonight.  Will he have a seizure type spell and be disoriented.  Will he come in calmly and cuddle so hard that he becomes a second layer of skin.  Or will we have a rare night he sleeps through the...
Why?

Why?

How many of you have asked yourselves, “Why me?” “Why my son/daughter?”  “Why does he/she have to go through this?”  “Why can’t this be easier?” It is human nature to ask those questions, and many more. A parent of a child with cancer asks themselves the same...
Wild and Free

Wild and Free

I have been reading this great book, Wild and Free by Jess Connolly & Hayley Morgan.  I was greatly impacted by the following: “Ladies, this is what scares me. When a horse is finally tamed and trained, bearing the burden of saddle and human expectations...
The Good Days

The Good Days

The good days make it all worth it! Endless hours in the car. Tireless calls to insurance companies, doctors offices, therapies… The constant feeling you are not meeting your child’s needs (typically not fully understanding what they are). Sleepless...
I Quit!

I Quit!

Somedays I look at my husband and tell him, “I Quit.” “I can’t do it anymore!” “I Quit.” He looks at me and says, “do you really quit?” “You will never quit loving your babies.” So I cry and say, “No, it’s just so hard some days!” That is the truth...